Our
Story
Based in Edinburgh, Love From Jamie is run by us, Jamie’s parents Martin and Fiona, and we work hard to fundraise in order to provide financial support to families when they need it most.
We decided to set up Love From Jamie in our son’s name to help other families who find themselves a situation like ours.
Whilst we cannot take away the pain families go through, we aim to ease some of the financial pressure that comes with taking time off work, the expense of counselling appointments or additional funeral costs.
The charity is solely funded through fundraising from events we’ve organised ourselves, participating in events as an affiliated charity, and from people who have chosen to fundraise on our behalf through a number of different ways – sporting events, challenges at work or school, or memorial collections.
While Jamie was still in neonatal care following his birth in December 2018, we received the news that his brain had developed abnormally and that life for our little one would be far from straightforward.
We were told that it was unlikely that Jamie would walk or talk which was devastating.
On top of this Jamie was born with Talipes, more commonly known as clubfoot, had bone marrow that didn’t work properly, his hearing was impaired, and he had a floppy airway.
Over the next 8 months Jamie endured a plethora of hospital appointments and stays which he faced bravely.
Unfortunately, Jamie’s challenges continued to grow, and he died, snuggled up with us at Edinburgh’s Sick Kids Hospital in August 2019.
Jamie is a unique little one – we don’t know what caused his challenges, we know that there was a genetic disorder that caused him to be born with his issues – but we will never have an official diagnosis. Around 6,000 children are born in the UK each year with a syndrome without a name – a genetic condition so rare that it is often impossible to diagnose.